09
Downloadable software; downloadable electronic publications;
Downloadable electronic publications, namely, newsletters,
articles, studies, reports, journals and pamphlets in the
field of congenital adrenal hyperplasia medical research;
downloadable software app to enable users to access a
patient health registry; Downloadable electronic training
materials in the field of congenital adrenal hyperplasia
16
Printed publications; Printed publications, namely,
newsletters, articles, studies, reports, journals, magazines
and pamphlets in the field of congenital adrenal hyperplasia
medical research; Printed training materials in the field of
congenital adrenal hyperplasia
35
Promoting the interests of people who have congenital
adrenal hyperplasia and their families and health care
providers (term considered too vague by the International
Bureau - Rule 13 (2) (b) of the Regulations); maintaining a
registry of patients with congenital adrenal hyperplasia;
Administering a patient registry for patients with
congenital adrenal hyperplasia
41
Educational services; Educational services, namely,
providing seminars, webinars, workshops, conferences and
colloquia in the field of congenital adrenal hyperplasia;
Providing non-downloadable electronic publications;
Providing non-downloadable electronic publications, namely,
newsletters, articles, studies, reports, journals,
magazines, blog posts and pamphlets in the field of
congenital adrenal hyperplasia medical research; Providing
non-downloadable electronic training materials in the field
of congenital adrenal hyperplasia
42
Medical and scientific research services; providing an
online computer database that contains data on clinical
outcomes, patient-reported outcomes, clinician-reported
outcomes, caregiver outcomes and health care resource
utilization (term considered too vague by the International
Bureau - Rule 13 (2) (b) of the Regulations); providing
information in the field of medical and scientific research
featuring a registry of patients with congenital adrenal
hyperplasia; administering a scientific advisory committee
(term considered too vague by the International Bureau -
Rule 13 (2) (b) of the Regulations); hosting an online
community website featuring shared communications between
community members in the field of congenital adrenal
hyperplasia; providing an online community for users to
engage with and share information in the field of congenital
adrenal hyperplasia (term considered too vague by the
International Bureau - Rule 13 (2) (b) of the Regulations);
computer services, namely, creating an online community for
registered users to participate in discussions, get feedback
from their peers, form virtual communities, and engage in
social networking services in the field of congenital
adrenal hyperplasia (term considered too vague by the
International Bureau - Rule 13 (2) (b) of the Regulations);
creating an on-line community for doctors, patients,
clinicians and caregivers for the purpose of participating
in discussions about congenital adrenal hyperplasia (term
considered too vague by the International Bureau - Rule 13
(2) (b) of the Regulations)
44
Providing medical information; Providing a website featuring
a registry of patients with congenital adrenal hyperplasia
(term considered too vague by the International Bureau -
Rule 13 (2) (b) of the Regulations); providing medical and
health information to consumers, patients, doctors, and
caregivers in the field of congenital adrenal hyperplasia
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