09
Downloadable software; downloadable electronic publications;
downloadable electronic publications, namely, newsletters,
articles, studies, reports, journals and pamphlets in the
field of congenital adrenal hyperplasia medical research;
downloadable software app to enable users to access a
patient health registry; downloadable electronic training
materials in the field of congenital adrenal hyperplasia
16
Printed publications; printed publications, namely,
newsletters, articles, studies, reports, journals, magazines
and pamphlets in the field of congenital adrenal hyperplasia
medical research; printed training materials in the field of
congenital adrenal hyperplasia
35
Promoting the interests of people who have congenital
adrenal hyperplasia and their families and health care
providers (terms too vague in the opinion of the
International Bureau – Rule 13 (2) (b) of the Regulations);
maintaining a registry of patients with congenital adrenal
hyperplasia; administering a patient registry for patients
with congenital adrenal hyperplasia
41
Educational services; educational services, namely,
providing seminars, webinars, workshops, conferences and
colloquia in the field of congenital adrenal hyperplasia;
providing non-downloadable electronic publications;
providing non-downloadable electronic publications, namely,
newsletters, articles, studies, reports, journals,
magazines, blog posts and pamphlets in the field of
congenital adrenal hyperplasia medical research; providing
non-downloadable electronic training materials in the field
of congenital adrenal hyperplasia
42
Medical and scientific research services; providing an
online computer database that contains data on clinical
outcomes, patient-reported outcomes, clinician-reported
outcomes, caregiver outcomes and health care resource
utilization (terms too vague in the opinion of the
International Bureau – Rule 13 (2) (b) of the Regulations);
providing information in the field of medical and scientific
research featuring a registry of patients with congenital
adrenal hyperplasia; administering a scientific advisory
committee; hosting an online community website featuring
shared communications between community members in the field
of congenital adrenal hyperplasia; providing an online
community for users to engage with and share information in
the field of congenital adrenal hyperplasia (terms too vague
in the opinion of the International Bureau – Rule 13 (2) (b)
of the Regulations); computer services, namely, creating an
online community for registered users to participate in
discussions, get feedback from their peers, form virtual
communities, and engage in social networking services in the
field of congenital adrenal hyperplasia (terms too vague in
the opinion of the International Bureau – Rule 13 (2) (b) of
the Regulations); creating an on-line community for doctors,
patients, clinicians and caregivers for the purpose of
participating in discussions about congenital adrenal
hyperplasia (terms too vague in the opinion of the
International Bureau – Rule 13 (2) (b) of the Regulations)
44
Providing medical information; providing medical and health
information to consumers, patients, doctors, and caregivers
in the field of congenital adrenal hyperplasia; providing a
website featuring a registry of patients with congenital
adrenal hyperplasia (terms too vague in the opinion of the
International Bureau – Rule 13 (2) (b) of the Regulations)
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